I just told Steve that I haven't posted here since February. He said, how slack. I have several drafts that I have started but just never get around to finishing.
Today is the 30th of November. It is the last day of diabetes awareness month so I need to post about it.
Having 3 children with diabetes is tough. I keep on thinking it will get easier but it never does. It is just as demanding today as it was nearly 3 years ago when Amelia was first diagnosed. In some ways it is more demanding because teenagers just want to fit in and not be different from all the others so I need to be more diligent in making sure they have check bsl and had insulin at meal times.
I thought during diabetes awareness week that I could tweet and post updates on Facebook when I was doing different things for my children and what it is like to have 3 children with diabetes. I just didn't get around to doing anything really. I guess that is the reality of having three children with this.
We still pray for a cure but I see so many articles about something promising that just don't seem to go anywhere that I am starting to think it will be a long way down the road. I keep an eye on Dr. Faustman's research mainly because I believe she is the one that will really help all type one diabetics and other auto immune diseases. I guess now it is just a thing I watch and wait for but not with baited breath.
Because a cure seems like a long way away and because I find it so demanding looking after 3 children with it, I went online earlier this year looking for some support.I asked about families that live with multiple diagnosis and got directed to a couple of Facebook groups that lead to the finding of the Danii Foundation.
I became a friend of the charity as soon as I found it. It was great to find a charity that is working to make lives of type one people easier. The main aim of the foundation is to get continuous glucose monitoring on the NDSS. This is one thing I would love our children to have but with three of them needing it, it is just way to expensive for us. Cost for 1 child is around $5000.00 a year so there is no way we can do it full time. We will have 10 weeks of CGM starting on the 14th of December. It is better than nothing and hopefully it will make my life a bit easier.
Next year in January, we will go on the Jelly Bean Cruise with the Danii foundation. I am excited about going on a cruise and meeting more families that deal with this disease.