Friday, November 14, 2014
Type one diabetes came into our lives back in 2001. Our whole family is affected by this, not just the three children that live with it. It has impacted on us all and I am sure all my children could tell you stories of why we want to find a cure and what it would change for us.
When Tom was first diagnosed, I thought we would give him an injection each day and that he would live just like other children. I didn't realise that he was going to have hypo and hyper blood sugars, I didn't realise that any sport he did was going to affect his bsl, I didn't realise that any kind of illness would end up with him in hospital with a drip to keep him hydrated. I have learnt a lot since then though and there isn't much I don't know about diabetes now.
One of the things I have learnt a lot about is looking for a cure.
When I talk about curing diabetes, I think about having life without checking bsl, without giving any kind of injections, without weighing ever portion of food and working out how many carbohydrates each child is eating, without worrying about what some sports activity will do and without worrying about what an inaction or action is going to bring about.
Lots of research is looking at ways to regenerate islets. The thinking is, islets have been killed in the pancreas so we need to replace them to cure diabetes. In theory, this sounds right but I don't think finding a way to replace the islets will cure diabetes.
The reason people with type one diabetes have no islets is because their body has an antibody that kills the islets. These antibodies don't just disappear, they stay forever. I think that the cure we need to look for is getting rid of the antibodies that attack the islets in the first place.
The first time I realised this was when I watched this video by Dr. Faustman.
From the reading I have done. BCG will need to be injected into people with type one and repeated for their life but it will make our life so much easier. We support Dr. Fausttman's work because it is ethical and I believe it has the most promise.
Monday, November 10, 2014
I will be doing some posts here but it is very quick and easy to do updates on Facebook from my tablet and phone.
I am only 8 likes away from 100 likes so hope you would all go and like my page.
Tuesday, October 21, 2014
In the first week, we celebrated my 48th birthday. Only two years till our 50th. It was a nice day. The family went to Mass together in the morning and then we had our parish priest and one of our seminarians over for lunch.
The weather for the first week was quite warm. It was a good time to start summer sewing. I sewed a few tops for me and a couple for a girlfriend.
In the second week, Steve and I travelled to Melbourne. We took Tom and Christopher to Adelaide with us and left them with Daniel and Amelia and Joseph stayed in Port Augusta with Brigette in charge.
Steve and I stayed at the Murcure in Albert Park. We had a very nice view of Lake Albert.
It was one of the best stage shows I have ever seen. I spent a lot of time listening to the soundtrack on YouTube in the weeks leading up to our holiday so knew the songs well. My favourite song would have to be Falling Slowly.
We arrived in Melbourne on Tuesday. Wednesday we had a sleep in and then went to town. We visited St. Patrick's Cathedral for Mass and then sat and prayed for a while after. After a late lunch we went back to the hotel and spent the evening there. \
Thursday we got up early and went out to see my uncle and aunt. They live in the eastern suburbs and we spent the day with them.
Thursday night was Once and on Friday we sat around most of the day at our hotel. It was nice to sit and relax and not have to do anything. After lunch, I ventured out on my own and navigated my way to Lincraft to look at fabric. they were having a sale and I would have bought a lot but I knew I had to get it back home and didn't want to have my luggage weighing more than was allowed.
Friday night we meet my cousin, his fiancée and a good friend that we haven't seen for years. We went to Lygon Street and I had one of the best lasagne's I have ever eaten.
Wednesday, September 24, 2014
Thursday, September 18, 2014
In 18 short days, she will fly to Thailand with International Volunteer HQ. She is going there for 3 months to teach English to young children.
When she told us at the beginning of the year that she wanted to do this, I really doubted she would be able to save the money and afford all the expenses living away from home. I have been pleasantly surprised that she has managed to do this. It has taken sacrifices and hard work but she has got there.
We will stay in touch via Skype while she is away and hopefully she will send some postcards to us. Mostly, I hope she keeps up blogging and records all her adventures. You can check out her blog here
Monday, September 15, 2014
Tom has had a hard year with his diabetes. Twice he has been flown to Adelaide with flying doctors with DKA. He decided he wanted to have injections each day instead of a pump. His hba1c has been going up up up and we had to change something to bring it down. MDI (multiple daily injections) seemed to be the best way to do this. Since he isn't on a pump, he tends to forget to have his injections and this is what has caused DKA both times. Since his last trip, Steve has been supervising his morning injections and bsl checks.
Amelia and Chris are still pumping and they are going pretty well with it. It has been challenging though getting the right basal rate for them both. I upload their pumps to the internet each week and their endocrinologist looks at their readings and emails me what needs to be changed.
Although it seems like it sometimes, diabetes is not the only thing going on in our lives. There has been plenty of good things happening.
In March, Daniel got engaged to a beautiful young lady, Angelique. Here is the family photo that was taken at their engagement party.
We are so happy that Daniel has found such a lovely girl to marry and we are all looking forward to their wedding in January.
In June, Amelia was confirmed by our Bishop. Here she is after the ceremony.
This year, a lot of my friends have turned 50 and we have had 3 trips back to Adelaide for their birthday parties. The last one was one of our grooms men, Mark. While we were in Adelaide for his party, Steve and I went to Festival Theatre and watched Grease, The musical. It was a great afternoon and we really loved getting out on our own. Here is a photo of me outside door 11. That was the entry door for our seating.
Hope you are all well. Looking forward to catching up with all your blogs soon.
Sunday, February 02, 2014
When it comes to sewing, I always want to sew more than I have the time for. I have so much fabric from times that I have bought a whole heap and never got around to sewing. This year, I have decided I am going to work on all this fabric and what is left at the end of the year will go. The reality is, I just have too much clutter. I could keep it all till I have sewn it all but really, I need to have less clutter in my life.
To help me along with this, I have decided to post once a week, something sewn from my stash.
So here is this weeks shorts. I have a pair for Tom and a pair for Christopher. Hopefully, by the end of the week, I will also have a pair for Joseph.